Smiles for Miles announces events
The Smiles for Miles Charitable Foundation has announced several upcoming activities and events.
Founder Penny Brunner of Bellwood has published the “Smiles for Miles International Cookbook,” compiling home-cooked recipes from families all over the world who have either lost a child to rare pediatric genetic disease or are currently raising a child battling such diseases.
Brunner founded the foundation after her grandson, Miles, now 2, was diagnosed with Nonketotic Hyperglycinenemia (NKH). She also has published three children’s books. All proceeds go to families and to achieve the foundation’s core missions. To view or order these books, visit www.smilesformiles.info.
The foundation will host the Smiles for Miles Golf Tournament and Pig Roast on Sept. 5 at Toftrees Resort & Golf Club, State College.
To register or for more information, email Matthew Brunner at Mbrunpsu@gmail.com.
Guest speakers from Milton S. Hershey Children’s Hospital are planned.
Concert in the Park
Smiles for Miles will host its first Smiles for Miles Concert in the Park on Sept. 13 at DelGrosso’s Amusement Park, Tipton.
The event will celebrate special needs children and their families.
DelGrosso’s will also be honoring Grandparents Day, and all grandparents will ride for free.
The event will start with a “meet and greet” at 11 a.m. Beginning at 1 p.m., a DJ will play music and entertain children and their families. DelGrosso’s will have a spaghetti dinner from 4 to 5 p.m. The cost is $7.50 for adults and $6 for children ages 10 and younger. Tickets should be purchased in advance by calling 935-9238. Takeouts will be available.
Throughout the event, there will be various healthcare and family agencies’ exhibits, including Make-A-Wish of Central Pennsylvania; the Special Kids Network, South Central Region, Pennsylvania; We Care Therapy Services, Altoona; Kids First Family Services Center, Altoona; and YTI Career Institute’s medical programs.
Beginning at 4 p.m., Rick Wertz and the band Last Stand will take the music stage to entertain with some music from the 1970s and ’80s.
Various businesses have donated door prizes and raffle items. All donations raised at this event will go to families that are raising children with rare and life-threatening pediatric disorders.
The foundation is now a member of The Arc of Blair County and a member of the Centre County Council for the Human Services and is also working as a liaison with the Early Intervention Therapy Services throughout the region.
The foundation has four core missions:
n Raise awareness of Nonketotic Hyperglycinemia (NKH) and other rare pediatric genetic disorders.
n Raise awareness of cortical visual impairment/cortical blindness.
n Help families currently raising children with such disorders.
n Raise funds for research.
Brunner has been working with the Pennsylvania state legislation for two years to have the newborn child screening program to include NKH. This would be the 29th disease/disorder to be added to the newborn screening in 50 years.
The bill is in the Health Committee.